Comments for Life with CP http://lifewithcp.com A family's story living with cerebral palsy in Chicago Wed, 07 Oct 2009 17:18:09 +0000 http://wordpress.org/?v=2.9 hourly 1 Comment on How Mothers of Handicapped Children Are Chosen by Jane Duke http://lifewithcp.com/2008/11/07/how-mothers-of-handicapped-children-are-chosen/comment-page-1/#comment-1848 Jane Duke Wed, 07 Oct 2009 17:18:09 +0000 http://lifewithcp.com/?p=81#comment-1848 Thank you for this article!! My daughter is one of those chosen few to have been blessed with Eric Hunter 7 years ago on Jan 2nd. She says he is not handicapped and he just does things another way. It has been difficult for her to adapt. As her mother who watched her fight leukemia at age 7 -10 it is particularly difficult. I will add that anything we go through is not nearly as hard as Eric's struggles. The fact that I am a nurse makes things more frustrating as we search for answers. Thank you, Jane Duke Thank you for this article!! My daughter is one of those chosen few to have been blessed with Eric Hunter 7 years ago on Jan 2nd. She says he is not handicapped and he just does things another way. It has been difficult for her to adapt. As her mother who watched her fight leukemia at age 7 -10 it is particularly difficult. I will add that anything we go through is not nearly as hard as Eric’s struggles. The fact that I am a nurse makes things more frustrating as we search for answers. Thank you, Jane Duke

]]> Comment on Removing the word “Can’t” from your vocabulary. by Diane http://lifewithcp.com/2009/06/02/removing-the-word-cant-from-your-vocabulary/comment-page-1/#comment-739 Diane Fri, 05 Jun 2009 07:50:27 +0000 http://lifewithcp.com/?p=92#comment-739 Wow - what an inspiring video! We are just beginning our journey with CP. No official diagnosis, yet, for our son. This video was sad, but at the same time, a joy to watch. We have a long road ahead of us and need positive, encouraging information. Thank you for sharing. Wow – what an inspiring video! We are just beginning our journey with CP. No official diagnosis, yet, for our son. This video was sad, but at the same time, a joy to watch. We have a long road ahead of us and need positive, encouraging information. Thank you for sharing.

]]> Comment on How does adversity affect YOU? by amy http://lifewithcp.com/2009/05/13/how-does-adversity-affect-you/comment-page-1/#comment-694 amy Tue, 26 May 2009 01:44:28 +0000 http://lifewithcp.com/?p=91#comment-694 Hi Natalie, Ah...a kindred spirit to my own!! My daughter is now 4 and has spastic diplegia. 33w, NICU 5w, delays, surgeries, therapies, yada yada. You get it. Your son is adorable! Amy Hi Natalie,
Ah…a kindred spirit to my own!! My daughter is now 4 and has spastic diplegia. 33w, NICU 5w, delays, surgeries, therapies, yada yada. You get it.
Your son is adorable!
Amy

]]> Comment on How does adversity affect YOU? by Kristen http://lifewithcp.com/2009/05/13/how-does-adversity-affect-you/comment-page-1/#comment-666 Kristen Fri, 15 May 2009 01:47:20 +0000 http://lifewithcp.com/?p=91#comment-666 Nice to see a post here again. I was just thinking of your blog today... Nice to see a post here again. I was just thinking of your blog today…

]]> Comment on Special Kids Day at Elmhurst Art Museum by Thomas http://lifewithcp.com/2008/12/12/special-kids-day-at-elmhurst-art-museum/comment-page-1/#comment-628 Thomas Wed, 06 May 2009 14:38:26 +0000 http://lifewithcp.com/?p=84#comment-628 Hey, just stoped to say that I like the way you write...You made my day :D Thanks for this! Hey, just stoped to say that I like the way you write…You made my day :D Thanks for this!

]]> Comment on Special Kids Day at Elmhurst Art Museum by Leonida Frutiger http://lifewithcp.com/2008/12/12/special-kids-day-at-elmhurst-art-museum/comment-page-1/#comment-553 Leonida Frutiger Fri, 24 Apr 2009 06:16:10 +0000 http://lifewithcp.com/?p=84#comment-553 As a Newbie, I am always searching online for articles that can help me. Thank you As a Newbie, I am always searching online for articles that can help me. Thank you

]]> Comment on Special Kids Day at Elmhurst Art Museum by Kristen http://lifewithcp.com/2008/12/12/special-kids-day-at-elmhurst-art-museum/comment-page-1/#comment-404 Kristen Thu, 26 Mar 2009 03:57:46 +0000 http://lifewithcp.com/?p=84#comment-404 This is a really nice site to find. Thanks for posting what you have so far. I'm sure you are busy, but I hope you keep it up. We have lots of questions about our own "delayed" two-year-old son, and I can really relate to your post about your meeting with Jacob's neurologist. It's hard not knowing where exactly one fits in or who exactly has the answers. Living in the moment is sometimes the best we can do, I think, but it's hard. p.s. Jacob is CUTE! I bet he gets away with murder when he flashes that smile! This is a really nice site to find. Thanks for posting what you have so far. I’m sure you are busy, but I hope you keep it up. We have lots of questions about our own “delayed” two-year-old son, and I can really relate to your post about your meeting with Jacob’s neurologist. It’s hard not knowing where exactly one fits in or who exactly has the answers. Living in the moment is sometimes the best we can do, I think, but it’s hard.

p.s. Jacob is CUTE! I bet he gets away with murder when he flashes that smile!

]]> Comment on Special Kids Day at Elmhurst Art Museum by toddler toys http://lifewithcp.com/2008/12/12/special-kids-day-at-elmhurst-art-museum/comment-page-1/#comment-331 toddler toys Mon, 16 Mar 2009 20:59:43 +0000 http://lifewithcp.com/?p=84#comment-331 I dont usually comment, but after reading through so much info I had to say thanks I dont usually comment, but after reading through so much info I had to say thanks

]]> Comment on Botox by Sarah http://lifewithcp.com/2008/09/08/botox/comment-page-1/#comment-13 Sarah Mon, 10 Nov 2008 06:03:23 +0000 http://lifewithcp.com/?p=11#comment-13 Hi. Its alright about the questions. No, no medicines. No they never have really talked about it, i just live with it. We think I got it when I was 10 or so, cause I was in grade school, but not sure on the exact age. And about the limp, it was never a big deal to the doctors, that I remember, I was just a way to ease pain in my leg. I recieved physical therepy after the first time i got botox, but I was little and unwilling to keep up with it, at home. I have said I wanted to go back, and that sent me to a not a physical therapist, but gave me options on how to work on my leg, im guessing a Physiatrist, but im not sure. Other than that no other doctor anymore, besides my regular doctor. Thanks for the compliments and thanks for the luck.Same to you and your son. Sarah Hi.

Its alright about the questions. No, no medicines. No they never have really talked about it, i just live with it. We think I got it when I was 10 or so, cause I was in grade school, but not sure on the exact age. And about the limp, it was never a big deal to the doctors, that I remember, I was just a way to ease pain in my leg. I recieved physical therepy after the first time i got botox, but I was little and unwilling to keep up with it, at home. I have said I wanted to go back, and that sent me to a not a physical therapist, but gave me options on how to work on my leg, im guessing a Physiatrist, but im not sure. Other than that no other doctor anymore, besides my regular doctor. Thanks for the compliments and thanks for the luck.Same to you and your son.

Sarah

]]> Comment on Botox by Natalie http://lifewithcp.com/2008/09/08/botox/comment-page-1/#comment-12 Natalie Sun, 09 Nov 2008 16:31:21 +0000 http://lifewithcp.com/?p=11#comment-12 Hi Sarah... thanks for posting again. Let me know how the botox goes for you. I am interested to see how it actually feels from someone who goes through it. Jacob is only 2 and can't use words to tell me. (There was a bit of crying....) We didn't use a numbing cream, maybe we will next time. He is scheduled to go again, if needed, in January. It's great that you are such a success story. You should be so proud of yourself. I am willing to bet that you worked pretty hard to get where you are today- and being on the mommy end of it, I bet your parents are too. What do the doctors tell you about your limp? Do you still receive physical therapy? Which kind of doctors are you still followed by? Orthapedic? Physiatrist? Neurologist? We have a team of 6 doctors and see 5 different therapists. You really inspire me...while Jacob still very much needs his walker to walk, I can see a little glimpse of his future without one... Good luck tomorrow. Natalie Hi Sarah… thanks for posting again. Let me know how the botox goes for you. I am interested to see how it actually feels from someone who goes through it. Jacob is only 2 and can’t use words to tell me. (There was a bit of crying….) We didn’t use a numbing cream, maybe we will next time. He is scheduled to go again, if needed, in January.
It’s great that you are such a success story. You should be so proud of yourself. I am willing to bet that you worked pretty hard to get where you are today- and being on the mommy end of it, I bet your parents are too.
What do the doctors tell you about your limp? Do you still receive physical therapy? Which kind of doctors are you still followed by? Orthapedic? Physiatrist? Neurologist? We have a team of 6 doctors and see 5 different therapists.
You really inspire me…while Jacob still very much needs his walker to walk, I can see a little glimpse of his future without one…
Good luck tomorrow. Natalie

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