Life with CP

A family's story living with cerebral palsy in Chicago

Life with CP - A family's story living with cerebral palsy in Chicago

Weaning off of Keppra

After 2 years on Keppra, I forgot who my good little boy was.  Many have given the anti-seizure medicine, Keppra,  the notorious name of “Kepprage”.   It gives some children irritability and aggressiveness.  This past year has been especially hard on our family because the aggressiveness that come with the drug was paired with the terrible two’s and horrible three’s.!  I tried giving him B-6, which was a suggestion from my neurologist. B-6 is known to have mood elevating effects.  Sadly, I did not see much of a difference.

       Since we have not seen many myoclonic episodes since starting the Keppra, our neurologist suggested that maybe it is time to wean him off to see if he has outgrown his seizures.  Over the course of 3-4 weeks, we have weaned him off slowly, with great success.  When Jacob has had an episode, he usually stares into space, checks out, and seems like his mind is elsewhere.  Then he comes back with a single “startle”.  I am so hopefull since we have not seen any of these episodes.

   Most importantly, his behavior has improved immensely!  He would throw a tantrum if I would say no to something, or I would stop his favorite shows.  Now, he seems to be able to accept it and move onto another activity more smoothly.  We have been playing more games together and he seems more fun-loving.  I am amazed at how often I receive spontaneous hugs and kisses. 

     I never looked into changing his medications, because Keppra worked so well for him. But after seeing this huge difference I will think about trying other medications first.   In 3 weeks, we are scheduled for another EEG- I can’t wait to see the results!

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