I was just looking back through my posts and found one from a year ago. I can’t believe that we are still in the same situation as far as how we will transport our son. Currently, he is in a MacLaren fold up, but his toes are almost touching the ground. Due to his high tone, he rarely is able to keep his legs bent and resting on the foot rest. I really thought that we would be past this issue by now???? I had hoped that by now, he would be walking longer distances. Jacob’s scissoring was really terrible towards the end of spring and his last series of botox shots had not worked at all. Our doctor suggested surgery, which we had 6 weeks ago.
He is walking so well now- I am hopeful that we can continue to work endurance. As a matter of fact, a few days ago, we went to the store to fix a pair of glasses. I found parking 1/2 a block down the street and we walked to to store. It takes a while because he gets so distracted with cars, dogs, and babies passing him by. We rested and ate a cookie at Starbuck’s next door before walking all the way back. This was the first time that we have left the “just incase of fatigue” stroller in the car! I’m so proud of him!!!
While we were inpatient at Rehab Institute of Chicago, our therapist had lent us a wheelchair to try out. I was very much against one in the past, because he has the ability to walk so well. Besides the “stigma” that wheelchairs often have. But I could not have been more wrong!!!! His posture was upright and was able to make eye contact with his peers, rather than being cramped up into our little stroller. It also provided him with more independence that he so much needs, being 3 years old. After only a day, he got the hang of rolling himself around. Jacob was able to explore his environment so much more than being locked into his stroller. He rolled himself over to the table, as well as out in the hall. We have an appointment to be fitted for one in a few weeks and I cannot wait! I never thought that he would have been able to roll himself independently- and if we never got the chance to try it- I think we would still be looking for another stroller.
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