Comments on: Botox http://lifewithcp.com/2008/09/08/botox/ A family's story living with cerebral palsy in Chicago Fri, 22 Jul 2011 18:04:07 +0000 http://wordpress.org/?v=2.9 hourly 1 By: Sarah http://lifewithcp.com/2008/09/08/botox/comment-page-1/#comment-13 Sarah Mon, 10 Nov 2008 06:03:23 +0000 http://lifewithcp.com/?p=11#comment-13 Hi. Its alright about the questions. No, no medicines. No they never have really talked about it, i just live with it. We think I got it when I was 10 or so, cause I was in grade school, but not sure on the exact age. And about the limp, it was never a big deal to the doctors, that I remember, I was just a way to ease pain in my leg. I recieved physical therepy after the first time i got botox, but I was little and unwilling to keep up with it, at home. I have said I wanted to go back, and that sent me to a not a physical therapist, but gave me options on how to work on my leg, im guessing a Physiatrist, but im not sure. Other than that no other doctor anymore, besides my regular doctor. Thanks for the compliments and thanks for the luck.Same to you and your son. Sarah Hi.

Its alright about the questions. No, no medicines. No they never have really talked about it, i just live with it. We think I got it when I was 10 or so, cause I was in grade school, but not sure on the exact age. And about the limp, it was never a big deal to the doctors, that I remember, I was just a way to ease pain in my leg. I recieved physical therepy after the first time i got botox, but I was little and unwilling to keep up with it, at home. I have said I wanted to go back, and that sent me to a not a physical therapist, but gave me options on how to work on my leg, im guessing a Physiatrist, but im not sure. Other than that no other doctor anymore, besides my regular doctor. Thanks for the compliments and thanks for the luck.Same to you and your son.

Sarah

]]> By: Natalie http://lifewithcp.com/2008/09/08/botox/comment-page-1/#comment-12 Natalie Sun, 09 Nov 2008 16:31:21 +0000 http://lifewithcp.com/?p=11#comment-12 Hi Sarah... thanks for posting again. Let me know how the botox goes for you. I am interested to see how it actually feels from someone who goes through it. Jacob is only 2 and can't use words to tell me. (There was a bit of crying....) We didn't use a numbing cream, maybe we will next time. He is scheduled to go again, if needed, in January. It's great that you are such a success story. You should be so proud of yourself. I am willing to bet that you worked pretty hard to get where you are today- and being on the mommy end of it, I bet your parents are too. What do the doctors tell you about your limp? Do you still receive physical therapy? Which kind of doctors are you still followed by? Orthapedic? Physiatrist? Neurologist? We have a team of 6 doctors and see 5 different therapists. You really inspire me...while Jacob still very much needs his walker to walk, I can see a little glimpse of his future without one... Good luck tomorrow. Natalie Hi Sarah… thanks for posting again. Let me know how the botox goes for you. I am interested to see how it actually feels from someone who goes through it. Jacob is only 2 and can’t use words to tell me. (There was a bit of crying….) We didn’t use a numbing cream, maybe we will next time. He is scheduled to go again, if needed, in January.
It’s great that you are such a success story. You should be so proud of yourself. I am willing to bet that you worked pretty hard to get where you are today- and being on the mommy end of it, I bet your parents are too.
What do the doctors tell you about your limp? Do you still receive physical therapy? Which kind of doctors are you still followed by? Orthapedic? Physiatrist? Neurologist? We have a team of 6 doctors and see 5 different therapists.
You really inspire me…while Jacob still very much needs his walker to walk, I can see a little glimpse of his future without one…
Good luck tomorrow. Natalie

]]> By: Sarah http://lifewithcp.com/2008/09/08/botox/comment-page-1/#comment-11 Sarah Sun, 09 Nov 2008 15:53:54 +0000 http://lifewithcp.com/?p=11#comment-11 if you didnt get this through email, here is what I wrote... Hi Natalie, no problem on posting. I toe-walk and the left side of my body is stiff. That pretty much as bad as it gets. I walk with a limp to help muscle pain. I've heard that i walked with a brace when i was little but don't remember. My parents say its a miracle I walk at all and when i was a baby and walked for the first time the doctor took me around showing everyone. ALso when i was little i got calf injections and it hurt really bad, but they really didn't do any numbing treatment. and with that i did some physical therapy. Now they are going to give me medicine, to sort of make me loopy. I'm getting it done a week from today(on 11/11/08) and the first casting about a week later, so it can take effect. My walking level is fine like I said above, I run the mile at school, just not as fast as everyone else(with the addition of asthma) and to take the pain out of my left side i put more wait on the right giving that more pain, kind of confusing. I'm guessing this would be a no, but can your son bend his toes, that is one thing I have problems with. i have very little ability to move my left toes and ankle. On the Orthotics I'm pretty sure of what I just read on it, it was one of my choices besides botox. I think the same for the AFO's. Sarah if you didnt get this through email, here is what I wrote…

Hi Natalie, no problem on posting.

I toe-walk and the left side of my body is stiff. That pretty much as bad as it gets. I walk with a limp to help muscle pain. I’ve heard that i walked with a brace when i was little but don’t remember. My parents say its a miracle I walk at all and when i was a baby and walked for the first time the doctor took me around showing everyone. ALso when i was little i got calf injections and it hurt really bad, but they really didn’t do any numbing treatment. and with that i did some physical therapy. Now they are going to give me medicine, to sort of make me loopy. I’m getting it done a week from today(on 11/11/08) and the first casting about a week later, so it can take effect. My walking level is fine like I said above, I run the mile at school, just not as fast as everyone else(with the addition of asthma) and to take the pain out of my left side i put more wait on the right giving that more pain, kind of confusing. I’m guessing this would be a no, but can your son bend his toes, that is one thing I have problems with. i have very little ability to move my left toes and ankle. On the Orthotics I’m pretty sure of what I just read on it, it was one of my choices besides botox. I think the same for the AFO’s.

Sarah

]]> By: Sarah http://lifewithcp.com/2008/09/08/botox/comment-page-1/#comment-10 Sarah Wed, 05 Nov 2008 02:57:07 +0000 http://lifewithcp.com/?p=11#comment-10 I am getting a similar thing done in my calf muscle. Its because when I was born 2 months early, I had right side brain bleed, giving be a 50% chance of having cerebalpaulsy but i got the lucky when the better 50%. I have a side eefect that causes me to toe-walk and my whole left side is my weak side. But tje procedure will be that they give me botox in my leg. Then a week later the will start the serial casting and i was wonder, if you know what kind of cast it is? BTW im 14 I am getting a similar thing done in my calf muscle. Its because when I was born 2 months early, I had right side brain bleed, giving be a 50% chance of having cerebalpaulsy but i got the lucky when the better 50%. I have a side eefect that causes me to toe-walk and my whole left side is my weak side. But tje procedure will be that they give me botox in my leg. Then a week later the will start the serial casting and i was wonder, if you know what kind of cast it is? BTW im 14

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